This is something that gets passed around communities of folks with rare/chronic diseases. It’s well worth the read, since most of us will cross paths with someone with a chronic illness at some point. I can’t think of a better analogy. Click on the link that says “click here to read The Spoon Theory”. It’s [...]
Archive for the ‘life after.....’ Category
Spoons and Swine
Posted in health care, life after....., the patient experience on November 5, 2009 | Leave a Comment »
The High Cost Of Being Highly Productive
Posted in life after..... on October 27, 2009 | Leave a Comment »
We Americans are obsessed with proving we are Superman. We don’t need food, we get our calories from coffee and cream. We don’t need sleep, we have LOTS of coffee. Shopping? That’s for people with no life. Lingering over a meal? Did you see the work waiting for me?
This interesting article, blog fodder in it’s [...]
As is confession
Posted in health care, life after....., the patient experience on October 11, 2009 | Leave a Comment »
In spite of having a file of posts stacked up like planes above O’Hare, there was a notable silence around these parts last week.
I awoke Friday morning, retreated to my recliner with it’s comforting heat and massage as is my ritual, to find this article waiting to fill my world with sunshine.
Six hours later I [...]
The whys and hows of self-care.
Posted in life after....., the patient experience on September 29, 2009 | Leave a Comment »
If there is one thing we folks with chronic/rare diseases do well it’s self care. Sometimes it’s been the only kind of care we had.
I like making lists of self care things that work. In part because when I need them, my brain is usually not capable of recalling them, in part because I want [...]
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